Connor is a typical 6 year old boy; he loves to play with cars, be with his friends at school and pretend to be any one of his favorite superhero's.
From early on Connor's frequent respiratory infections were a sign of something more than the common cold, despite hitting all his previous milestones. After 2 years of various testing to understand his low immune system and "wobbliness" Connor was seen by a Neurologist at Shriners’ Hospital in Tampa, Fl who recognized his symptoms. Further blood tests confirmed his assumption and Connor was diagnosed with Ataxia Telangiectasia September of 2009.Though he currently shows minimal physical signs, his immune system is weak and he is 1000% more at risk of leukemia or lymphoma than his friends. He currently takes daily antibiotics to help fight off infections and has weekly physical, occupational and speech therapy sessions to help maintain strength and balance while his condition progresses.
Connor is 1 of only 500 diagnosed children in the U.S. with A-T who need a cure!
Current Research Projects
Mitochondrial Reactive Oxygen Species and Dysfunction in Ataxia-Telangiectasia. Gerald Shadel, PhD. Yale University.
Wobbly Feet Funded January 2013.
Co-funded with the A-T Children's Project August 2011
Wobbly Feet Foundation, Inc. was created to provide education, an internet based support group and financial support to medical professionals who conduct scientific research for the improvement of symptoms or cure of Ataxia Telangiectasia, as well as, to provide financial support to families of a child diagnosed with Ataxia Telangiectasia for beneficial medical equipment and treatment.
4th Annual Pasta Bar for a Cure of A-T
2nd Annual Wobbly Feet Golf Tournament