Phone: 1.941.421.2503
Connor's story
Connor is a typical 4 year old boy; he loves to play with his cars, play with his friends at school and pretend to be Spiderman.
Connor's parents knew from early on that his frequent respiratory infections were a sign of something more than the common cold despite hitting all his previous milestones. After 2 years of various testing to understand his low immune system and "wobbliness" Connor was seen by a Neurologist at Shriners’ Hospital in Tampa, Fl who recognized his symptoms. Further blood tests confirmed his thought and Connor was diagnosed with Ataxia Telangiectasia, September of 2009. Though he shows minimal physical signs, his immune system is weak and he is 1000% more at risk of developing leukemia or lymphoma than his friends. He currently recieves physical, occupational and speech therapies and has quarterly bloodwork to monitor his immune system. His family is asking for your help to raise awareness and support efforts to find a cure for Connor and other "A-T" Children.
Current Research Projects
Linking Neurodegeneration to Protein Turnover in Ataxia Telangiectasia. Dr. Shyamal Desai, PhD. Louisiana State University. 8.201. Funded along side the A-T Childrens Project.
PCD mice as an Animal Model of Ataxia in A-T. Dr. Kamran Khokakhah, PhD. Albert Einstein University. 8.2011. Funded along side the A-T Childrens Project.
Events
Spa Day for a Cure, Venice, Fl. (ongoing online) Enter "WF" at the end of your name at check out $200 raised!!
Lakewood Ranch Scottish Festival, hosted by MacAllisters. November 19th, LWR Main St. $4000 raised!!
Mission
Wobbly Feet Foundation, Inc. was created to provide education, an internet based support group and financial support to medical professionals who conduct scientific research for the improvement of symptoms or cure of Ataxia Telangiectasia, as well as, to provide financial support to families of a child diagnosed with Ataxia Telangiectasia for beneficial medical equipment and treatment.
